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A
little purple pill, a women's volunteer
service, men in orange aprons, an up-scale
furniture designer, and a model-turned carpenterall
come together to help patients in need.
An unusual mixand an even more unusual
tale of medical staff, patients, and families
all working together for a better outcome.
Each day about 70 people receive an organ
transplant, but another 16 people on the
waiting list die because not enough organs
are available, according to data provided
by the United States Department of Health
& Human Services. NORA's Life Gift Foundation
is a non-profit organization dedicated to
supporting individuals with end-stage organ
disease, those in need of organ transplantation,
and other major medical trauma. Most families,
regardless of income, are not prepared for
the financial burdens that develop when
a loved one is in need of an organ transplant;
no family, regardless of strength, is prepared
for the emotional strain and stress associated
with the process. NORA's Life Gift Foundation,
Inc. plans to provide resources, both financial
and supportive, to patients and their families.
The foundation, established in 1998, strives
to memorialize the life of a young girl
named Nora and her charitable nature. Nora
died in a tragic auto accident at the age
of 7. "We wanted our daughter's wonderful,
compassionate and caring spirit to live
on," said Dr. Lillian Gaber. Dr. Lillian
Gaber, a professor in the Pathology Department
at University of Tennessee, and her husband
Dr. Osama Gaber, Chief of Transplant Division,
and professor of surgery, at University
of Tennessee Health Science Center, founded
NORA's Life Gift Foundation in memory of
their daughter Nora. Due to the dire need
in the medical community and to the efforts
of her family, their colleagues, and their
friends, "Nora" is not only synonymous
with compassion but now also represents
New hope for Organ Replacement Advancement.
NORA's Home, created by the foundation in
2001 to provide a home away from home for
patients and their families who travel to
receive major medical care. More than 3,000
families have come through the doors of
NORA's Home since it opened. Designed to
provide a place to rest, removed from a
hospital setting, it also provides a place
where families can share their stories and
fears with families going through similar
situations while providing emotional support.
The Junior League of Memphis' (JLM) goal
was to design rooms for NORA's Home with
a warm home-like environment. "We're
all committed to creating a warm comfortable
retreat for NORA's families," says
Kim MacQueen, President of the JLM. Thanks
to AstraZeneca, the makers of Nexium, the
JLM project received sponsorship as part
of their goal to create "healing spaces."
Andrew Dan-Jumbo joined the JLM and Home
Depot crew of volunteers in the unveiling
of the first remodeled room. Andrew, the
carpenter from the popular television show
While You Were Out, has attained rock-star
status among home-improvement fans of TLC.
His presence sparked energy among the surgeons,
staff, and JLM volunteers in Memphis as
he rolled up his sleeves and joined the
carpenters and plumbers generously provided
by the Memphis Home Depot, to transform
the previously sterile space. Interior designer
Michael Burgess, who created the custom
furniture for the rooms, says "I've
never been so proud to work with a team.
All this energy and enthusiasm. The Junior
League has worked right along side the Home
Depot team, never missing a step."
The remaining rooms will also be remodeled
in the near future, courtesy of the Junior
League.
NORA's Home is located in the heart of the
Memphis medical center. The center depends
on volunteers from staff in the surrounding
medical center, including the UT transplant
dept unit, as well as local high schools,
various churches and synagogues, the masonic
lodge, and community groups such as the
Junior League. Support and referrals are
provided by more than 25 physicians among
the medical center community. Members of
the Board of Directors include Dr. Lillian
Gaber, Dr. Osama Gaber, and Dr. Hosein Shokouh-Amiri.
Guest rooms encompass the entire second
floor. Patients and their families who stay
at NORA's Home travel from across the country
and around the world to receive medical
care at Le Bonheur Hospital, Methodist University
Hospital, UT Bowld, The Regional Medical
Center, the Veterans Affairs Center, ST.
Jude, and the cadre of doctors' offices
in the medical center. Families and long
term patients may stay for weeks or even
months while undergoing treatment and undergoing
recovery. Guests include transplant patients,
trauma patients, even cancer patients who
need to be near medical care for extended
periods of time. Originally designed to
fill a need in the transplant community
for post-surgical transplant recipients,
Dr. O. Gaber states, "we don't turn
anyone away because of their treatment type.
We're here for the families of our patients.
When you're really tired and you come here
at night and see all this good work, and
read the thank-you notes, it really warms
your heart."
The Organ Procurement and Transplantation
Network lists 87,194 candidates on the waiting
list for transplants as of November 1, 2004.
The number of people awaiting a deceased
donor kidney transplant in the United States
has exceeded 60,000 for the first time.
The truth is, despite continuing advances
in medicine and technology, the demand for
organs is vastly greater than the number
of organ donors. In 2004, 8,200 deceased
and living donors provided for 15,671 lifesaving
organ transplants. The National Foundation
for Transplants provides information on
becoming a donor and lists the most important
part of deciding to be a donor is telling
your family. Talking about donation doesn't
mean talking about death. It is talking
about the opportunity to give another person
a second chance at life. Even if you have
signed a donor card or indicated your wish
to donate on your driver's license, you
need to tell your family since they will
be consulted before donation can take place.
Corporate
Sponsors
NORA's Life Gift Foundation salutes our
corporate sponsors for their continued support
of NORA's Home. We extend our appreciation
for their support and commitment to the
patients, families, and the medical community.
Isis Level Patron
Methodist Healthcare University Hospital
Genzyme Corporation
Roche Pharmaceuticals
Novartis Pharmaceuticals
Wyeth Pharmaceuticals
UT Blood & Marrow Transplant
Center
Fujisawa Healthcare Inc.
University of TN Health Science Center
College of Nursing and The Center
for Health Evaluation and Lifestyle
Promotion
Community Partners
We thank our community partners for contributing
funds and volunteers to NORA's Home and
helping to extend our services to patients
and families in medical crisis.
Memphis Junior League
John Adams family
Harry J. Phillips family
Sponsorship
Opportunities:
GIVING THE GIFT OF LIFE
If the holiday season causes you to think
about donating time or money to a worthy
cause, or if you have the opportunity to
make it a part of your new years resolution,
please consider sponsoring one of the many
events to benefit NORA's Home:
Nov 19th, 2004
Memphis to Memphis.
Gala in the Cadre Building featuring Ruby
Wilson.
Egyptian Art Exhibit in the joysmith gallery.
April 2005
National Donate Life Month.
Youth celebration and internet auction.
November 2005
Memphis to Memphis.
Gala and Art Exhibit.
Organizations
and individuals who are interested in making
a donation or contributing to our wish list
of items needed for NORA's families may
go on-line to: www.noraslifegift.org
or can contact Dawn Vinson, Executive Director,
at 1.877.390.4663.
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